Do you ever feel like something is missing? I've missed sharing my experiences in my blog so I'm back to lend a somewhat crooked helping-hand for those with scleroderma and other chronic illnesses and autoimmune disease.
Category: optimism
Apheresis: Access, Dogs and Perspective – or What I Did Last Summer Part III
Like many people with autoimmune diseases, I receive therapeutic plasma exchange treatments. It is, however, less common for folks with scleroderma. Because I go to the Apheresis clinic twice per week this summer I tried to get a new port for access.
Chronic Illness and Post-Traumatic Growth: Bittersweet Reflections
I read about Post-Traumatic growth for this first time in March on the Heart Sisters Blog. Life with a chronic illness-scleroderma- may have gotten worse on a physical level, but I felt conflicted because in some deeper ways I believed that I was changed for the better.
Hopelessness vs Disappointment
When the doctor delivered the news I thought to myself,, "Well it's hopeless, I'm never getting better." I hadn't realized how much I was counting on this treatment working. Was I a fraud? Had optimism failed this hurdle?