Do you ever feel like something is missing? I've missed sharing my experiences in my blog so I'm back to lend a somewhat crooked helping-hand for those with scleroderma and other chronic illnesses and autoimmune disease.
Brrr, November has been so cold already, I recently decided to experiment with glove layering to protect my hands from a Raynaud's attack and it led me to a discovery that helped me out with a year-long problem of Raynaud's episodes while shopping in supermarkets. Looks a little silly, but food prep gloves are my latest hack for Raynaud's...
One night I caught myself wondering what the point of suffering could be, the thoughts that followed have given me much to ponder.
As I am writing this post one of my younger cousins is getting married. Yes, literally the ceremony is taking place right now! I am not there, but I am making the best of it.
It is Invisible Disabilities Week, here is why it is important to raise awareness and increase understanding for those who have invisible disabilities.
October is Raynaud's Awareness Month. Raynaud's phenomenon is triggered by cold or stress causing blood vessels in the extremities to spasm. It is quite common and may be an early warning sign of serious illness, here are 5 Things YOU Need to Know about Raynaud's.
Product Review: Spring and Fall Gloves for Frosties: protect fingers from Raynaud's episodes and allow you to operate electronic device touchscreens and have grips for driving and picking up smooth objects. HEAD Ultrafit running gloves.
Like many people with autoimmune diseases, I receive therapeutic plasma exchange treatments. It is, however, less common for folks with scleroderma. Because I go to the Apheresis clinic twice per week this summer I tried to get a new port for access.
While my brain fog seems to be clearing enough to actually read full books again, over the summer I took the opportunity to read three very diverse books, primarily to pass the time while commuting to my treatments, but also to get my mind working and as a diversion from pain and the monotony of life with chronic illness. I enjoyed each book immensely in their own way, and savoured the diversity of my choices.
I read about Post-Traumatic growth for this first time in March on the Heart Sisters Blog. Life with a chronic illness-scleroderma- may have gotten worse on a physical level, but I felt conflicted because in some deeper ways I believed that I was changed for the better.